Cancer, cloud and privacy shield

February 23, 2016 / G C Network / Comments Off on Cancer, cloud and privacy shield

The Time is Now for 21st Century Leadership

By G C Network | November 10, 2013

I’ve just had the opportunity to preview my good friend Melvin Greer’s newest effort, “21st Century Leadership: Harnessing Innovation, Accelerating Business Success“. Now in pre-release, this book highlights the compelling…

Public Cloud IaaS : A Price/Performance vs. Security Analysis

By G C Network | October 25, 2013

Industry’s transition from custom made, one-of-a-kind IT infrastructures to the standardize, commodity based cloud paradigm is well on it’s way. IBM’s recent “Under Cloud Cover” study highlights the rapidly of…

Catch the Cloud with DorobekINSIDER LIVE!

By G C Network | October 17, 2013

  Yesterday I thoroughly enjoyed an opportunity to participate in the DorobekINSIDER LIVE edition on cloud computing.  The conversation was both lively and informative.  Joining me on the show were:…

Cloud Shines Brightly as Future of Disaster Response IT

By G C Network | September 14, 2013

The call for help began as a rumble. Twenty miles beneath the ocean’s surface, a rupture in a massive tectonic plate ripped a 310 mile-long break in the sea floor,…

NCOIC/NGA Demonstrates Use of Cloud in Disaster Response

By G C Network | September 5, 2013

     When the world’s next major earthquake, tsunami or other disaster hits, military, government and civilian NGA project is available on the NCOIC website. responders will need to manage and…

NBC4 Puts On A Great GovCloud Show !!

By G C Network | August 25, 2013

NBC 4 in Washington, DC highlighted government cloud computing today as part of their GovInnovate show. Below is just a taste of the informative public service they provided.  Go to…

OMB’s Evidence Memo: A Call for Cloud Services Brokerage

By G C Network | August 21, 2013

by Ray Holloman and Kevin Jackson In a late July memo the Office of Management and Budget requested cloud services brokerage. Well, not in so many words. Rather, OMB requested…

Cloud Services Brokerage Lessons From Alex Rodriguez, Baseball’s Trade Deadline

By G C Network | August 8, 2013

( A guest post from Ray Holloman, NJVC Corporate Communications) Two stories sat atop baseball’s marquee in the final days of July. The first was the non-waiver trade deadline, baseball’s…

Lessons Learned: VA Cloud Email Termination

By G C Network | July 17, 2013

According to a Federal Computer Week article by Frank Konkel, The Department of Veterans Affairs terminated its five-year, $36 million cloud computing contract for email and calendaring services with HP…

Deconstructing Cloud: An Excellent Guide to the Cloud Computing World

By G C Network | July 15, 2013

On an almost daily basis, I’m approach for my views on “cloud computing technology”.  Although typically innocent in nature, I always cringe at the thought of enduring yet another hours…


(Originally published in Dell PowerMore)

For more than 10 years, the rapid rise of cloud computing has enabled an even more rapid application of cloud to genomic medicine. In fact, since the U.S. National Institutes of Health (NIH) lifted a 2007 ban on uploading their genomic data into cloud storage, the explosion in cloud use has accelerated. Some of the most impressive accomplishments in this field have included the:
• Pan-Cancer Analysis of Whole Genomes (PCAWG) project, that brings together whole-genome sequencing data from the International Cancer Genome Consortium (ICGC) and The Cancer Genome Atlas (TCGA) projects. This resource describes over 2000 tumor and matched control samples that cover more than 30 cancer entities. Academics will be using the EMBL-EBI Embassy Cloud and high-performance computing centers at the University of Chicago, the Electronics and Telecommunications Research Institute in Seoul, the University of California in Santa Cruz, the University of Tokyo and the Heidelberg Center for Personalized Oncology at the German Cancer Research Centre (DKFZ) (https://news.embl.de/science/1507-genome-cloud/);
• 100,000 Genomes Project in the United Kingdom includes genomic data from 70,000 people including National Health Service patients with a rare disease, plus their families, and patients with cancer;
• Phoenix, Arizona-based Translational Genomics Research Institute (TGen) and the Neuroblastoma and Medulloblastoma Translational Research Consortium on personalized medicine trials which uses high-performance computing in the cloud to sequence tumor samples to create new treatment database that help determine personalized drug therapy approaches for children. The project is also being expanded to pediatric cancer clinical trials in EMEA, starting with sites in France and Lebanon.
“Cloud Powered Genomics” brings with it:
• Speed. The time it takes to process the required 90 billion data points is reduced from 10 days to 6 hours or less



• Precision. The analysis of multiple terabytes of data now enables an ability for doctors to prescribe treatments that are fully matched to the individual patient instead of relying on treatments designed for a broad base of patients.
• Collaboration. Researchers and doctors worldwide can now share diagnostic and case information while drawing on an existing storehouse of massive medical knowledge which, in turn, helps improve outcomes and refines treatment protocols.
• Scalability. Storage and processing capacity grow over time as vast amounts of data are collected.

While cloud computing enables researchers and doctors to cost effectively analyze the enormous amount of data necessary to produce these insights at a rapid rate, the privacy issues raised are also daunting. Last year’snullification of Safe Harbor by the European Courts brings these issues to the forefront.
Even without announcing specific details, the European Commission announced a new framework for governing the flow of data across the Atlantic Ocean. Referred to as “Privacy Shield”, the agreement is meant to be a reflection of the requirements set out by the European Court of Justice in its ruling on 6 October 2015, which declared the old Safe Harbour framework invalid.
“The new arrangement will provide stronger obligations on companies in the U.S. to protect the personal data of Europeans and stronger monitoring and enforcement by the U.S. Department of Commerce and Federal Trade Commission (FTC), including through increased cooperation with European Data Protection Authorities. The new arrangement includes commitments by the U.S. that possibilities under U.S. law for public authorities to access personal data transferred under the new arrangement will be subject to clear conditions, limitations and oversight, preventing generalised access. Europeans will have the possibility to raise any enquiry or complaint in this context with a dedicated new Ombudsperson.”
Specific elements highlighted by the EC include:
• “Strong obligations” and “robust enforcement” on companies that handle Europeans’ personal data
• The U.S. Department of Commerce will monitoring of company published commitments to “Privacy Shield” that make the commitments enforceable under U.S. law by the FTC.
• Applicability to companies that handle human resources data from Europe.
• “Clear safeguards and transparency obligations” on U.S. government agencies’ access to data,
• Written assurances from the United States that access will be subject to “clear limitations, safeguards and oversight mechanisms”.
While the agreement has been lauded by many, its effect on the use of cloud computing on trans-Atlantic genomic research is still questionable. This new development will certainly introduce uncertainty and doubt into the business side of this important and burgeoning industry. We can only hope that any unintended circumstance don’t hinder this important medical progress.

( This post was written as part of the Dell Insight Partners program, which provides news and analysis about the evolving world of tech. Dell sponsored this article, but the opinions are my own and don’t necessarily represent Dell’s positions or strategies.)

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