Cancer, cloud and privacy shield

February 23, 2016 / G C Network / Comments Off

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“Cloud Musings” Named A “Top 50 Blog”

By G C Network | August 27, 2010

My appreciation and thanks goes out to Jeremy Geelan for including “Cloud Musings” on his list of the Top 50 Cloud Computing Blogs. Thanks is also in order for “HighTechDad”…

Will Oracle Buy Informatica?

By G C Network | August 25, 2010

According to 1,250 ERP Software Advice readers that will be Oracle’s next acquisition. Terradata came in a close second in this race, suggesting that Oracle will “…play it safe next time…

What’s Next For Oracle?

By G C Network | August 14, 2010

Watching Larry Ellison and Oracle over the years as it has morphed itself is a real study in market dynamics. It’s transformation from database company through middleware provider to now…

Enterprise Architecture Enables Innovation: Melvin Greer, Lockheed Martin

By G C Network | August 11, 2010

Earlier this week, my good fried and NCOIC colleage, Melvin Greer was interviewed by Rutrell Yasin of Government Computer News. In the interview, Mel focused on the importantance of entrprise…

Are You A Cloud Architect? NJVC Needs YOU!!

By G C Network | July 31, 2010

If you are a cloud computing architect, have I got news for you! NJVC, one of the largest IT solutions providers supporting the U.S. Department of Defense (DoD), is building…

“Army Private Cloud” RFP Released

By G C Network | July 28, 2010

Last week the US Army released a procurement solicitation for the Army Private Cloud. This $249M solicitation calls for a 1-year base period with four, 1-year options. Department of the…

In response to request, the inaugural “Cloud Musings Direct” newsletter was launched this week. This bi-weekly electronic newsletter will highlight important government cloud computing industry trends and events. If you…

CloudExpo Europe 2010: Not Your Father’s Prague

By G C Network | June 30, 2010

When my good friend Jeremy Geelan invited me to speak at CloudExpo Europe in Prague, Czech Republic my imagination went into overdrive. Being a child of the 60’s and a…

NCOIC Plenary Highlights Collaboration and Interoperability

By G C Network | June 29, 2010

Last week in Brussels, Belgium, the Network Centric Operations Industry Consortium highlighted it’s support of collaboration and interoperability through an information exchange session with the National Geospatial-Intelligence Agency (NGA) and…

GovLoop “Member of the Week”

By G C Network | June 22, 2010

Thank you to Radiah Givens-Nunez and GovLoop for the honor of being their Member of the Week for June 21-25, 2010. Created in 2008, GovLoop is an online social network…

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(Originally published in Dell PowerMore)

For more than 10 years, the rapid rise of cloud computing has enabled an even more rapid application of cloud to genomic medicine. In fact, since the U.S. National Institutes of Health (NIH) lifted a 2007 ban on uploading their genomic data into cloud storage, the explosion in cloud use has accelerated. Some of the most impressive accomplishments in this field have included the:

• Pan-Cancer Analysis of Whole Genomes (PCAWG) project, that brings together whole-genome sequencing data from the International Cancer Genome Consortium (ICGC) and The Cancer Genome Atlas (TCGA) projects. This resource describes over 2000 tumor and matched control samples that cover more than 30 cancer entities. Academics will be using the EMBL-EBI Embassy Cloud and high-performance computing centers at the University of Chicago, the Electronics and Telecommunications Research Institute in Seoul, the University of California in Santa Cruz, the University of Tokyo and the Heidelberg Center for Personalized Oncology at the German Cancer Research Centre (DKFZ) (https://news.embl.de/science/1507-genome-cloud/);

• 100,000 Genomes Project in the United Kingdom includes genomic data from 70,000 people including National Health Service patients with a rare disease, plus their families, and patients with cancer;

• Phoenix, Arizona-based Translational Genomics Research Institute (TGen) and the Neuroblastoma and Medulloblastoma Translational Research Consortium on personalized medicine trials which uses high-performance computing in the cloud to sequence tumor samples to create new treatment database that help determine personalized drug therapy approaches for children. The project is also being expanded to pediatric cancer clinical trials in EMEA, starting with sites in France and Lebanon.

“Cloud Powered Genomics” brings with it:

• Speed. The time it takes to process the required 90 billion data points is reduced from 10 days to 6 hours or less

• Precision. The analysis of multiple terabytes of data now enables an ability for doctors to prescribe treatments that are fully matched to the individual patient instead of relying on treatments designed for a broad base of patients.

• Collaboration. Researchers and doctors worldwide can now share diagnostic and case information while drawing on an existing storehouse of massive medical knowledge which, in turn, helps improve outcomes and refines treatment protocols.

• Scalability. Storage and processing capacity grow over time as vast amounts of data are collected.

While cloud computing enables researchers and doctors to cost effectively analyze the enormous amount of data necessary to produce these insights at a rapid rate, the privacy issues raised are also daunting. Last year’snullification of Safe Harbor by the European Courts brings these issues to the forefront.

Even without announcing specific details, the European Commission announced a new framework for governing the flow of data across the Atlantic Ocean. Referred to as “Privacy Shield”, the agreement is meant to be a reflection of the requirements set out by the European Court of Justice in its ruling on 6 October 2015, which declared the old Safe Harbour framework invalid.

“The new arrangement will provide stronger obligations on companies in the U.S. to protect the personal data of Europeans and stronger monitoring and enforcement by the U.S. Department of Commerce and Federal Trade Commission (FTC), including through increased cooperation with European Data Protection Authorities. The new arrangement includes commitments by the U.S. that possibilities under U.S. law for public authorities to access personal data transferred under the new arrangement will be subject to clear conditions, limitations and oversight, preventing generalised access. Europeans will have the possibility to raise any enquiry or complaint in this context with a dedicated new Ombudsperson.”

Specific elements highlighted by the EC include:

• “Strong obligations” and “robust enforcement” on companies that handle Europeans’ personal data

• The U.S. Department of Commerce will monitoring of company published commitments to “Privacy Shield” that make the commitments enforceable under U.S. law by the FTC.

• Applicability to companies that handle human resources data from Europe.

• “Clear safeguards and transparency obligations” on U.S. government agencies’ access to data,

• Written assurances from the United States that access will be subject to “clear limitations, safeguards and oversight mechanisms”.

While the agreement has been lauded by many, its effect on the use of cloud computing on trans-Atlantic genomic research is still questionable. This new development will certainly introduce uncertainty and doubt into the business side of this important and burgeoning industry. We can only hope that any unintended circumstance don’t hinder this important medical progress.

( This post was written as part of the Dell Insight Partners program, which provides news and analysis about the evolving world of tech. Dell sponsored this article, but the opinions are my own and don’t necessarily represent Dell’s positions or strategies.)

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