Cancer, cloud and privacy shield

February 23, 2016 / G C Network / Comments Off on Cancer, cloud and privacy shield

NCOIC Discusses e-Discovery and Cloud Computing

By G C Network | March 22, 2010

Last week during its weekly meeting, the NCOIC Cloud Computing Working Group (CCWG) examined some of the legal aspects surrounding electronically stored information. With government use of cloud computing expected…

Take the survey, get a book!

By G C Network | March 20, 2010

“Cloud Musings”, in cooperation with Aditya Yadav & Associates, is conducting a new cloud computing survey. This short, eight (8) question poll, is designed to gauge general corporate plans around…

Army Knowledge Leaders Study Cloud Computing

By G C Network | March 12, 2010

This week it was my pleasure to explore cloud computing with Army Knowledge Leaders (AKL) ! AKL is an intensive 2 year experience of training and work rotations designed to develop leadership,…

Northrop Grumman & Lockheed Martin Selected for CANES

By G C Network | March 9, 2010

   Last week the US Navy awarded initial CANES contracts to Northrop Grumman and Lockheed Martin. Navy officials place the contract values at $775M for Northrop and $937M for Lockheed.…

NCOIC Analyses Cloud Computing With SCOPE

By G C Network | February 24, 2010

Last week, the Network Centric Operations Consortium (NCOIC) Cloud Computing Working Group (CCWG) started it’s work on cloud interoperability in earnest. The first step in their process is the completion…

TASER Awarded: The NGA ASP/ISP Transition Contract

By G C Network | February 17, 2010

The National Geospatial-Intelligence Agency (NGA) has awarded the Total Application Services for Enterprise Requirements (TASER) contract to: Accenture National Security Services, LLC BAE Systems Information Technology, Inc. The Boeing Company-Autometric,…

EuroCloud Expands Quickly

By G C Network | February 16, 2010

Last October I introduced EuroCloud as a pan-European business network with the goal of promoting European use of cloud computing.  In the intervening three months, the organization has grown to…

Joining NJVC: A Professional Plateau

By G C Network | February 8, 2010

This week I begin a new and exciting phase of my professional career by joining the NJVC Enterprise Management Team! For those unfamiliar, NJVC is one of the largest information…

DoD Deputy CIO on Secure Information Sharing

By G C Network | February 3, 2010

Today on Federal Executive Forum, Dave Wennergren, Deputy CIO, Office of the Secretary of Defense, shared his views on secure information sharing. Mr. David M. Wennergren serves as the Deputy…

Training Conference: Cloud Computing for DoD & Government

By G C Network | February 1, 2010

Please join me at the Cloud Computing for DoD & Government training conference, February 22-24, 2010 at the Hilton Old Town in Alexandria, VA. This unique conference agenda blends interactive…


(Originally published in Dell PowerMore)

For more than 10 years, the rapid rise of cloud computing has enabled an even more rapid application of cloud to genomic medicine. In fact, since the U.S. National Institutes of Health (NIH) lifted a 2007 ban on uploading their genomic data into cloud storage, the explosion in cloud use has accelerated. Some of the most impressive accomplishments in this field have included the:
• Pan-Cancer Analysis of Whole Genomes (PCAWG) project, that brings together whole-genome sequencing data from the International Cancer Genome Consortium (ICGC) and The Cancer Genome Atlas (TCGA) projects. This resource describes over 2000 tumor and matched control samples that cover more than 30 cancer entities. Academics will be using the EMBL-EBI Embassy Cloud and high-performance computing centers at the University of Chicago, the Electronics and Telecommunications Research Institute in Seoul, the University of California in Santa Cruz, the University of Tokyo and the Heidelberg Center for Personalized Oncology at the German Cancer Research Centre (DKFZ) (https://news.embl.de/science/1507-genome-cloud/);
• 100,000 Genomes Project in the United Kingdom includes genomic data from 70,000 people including National Health Service patients with a rare disease, plus their families, and patients with cancer;
• Phoenix, Arizona-based Translational Genomics Research Institute (TGen) and the Neuroblastoma and Medulloblastoma Translational Research Consortium on personalized medicine trials which uses high-performance computing in the cloud to sequence tumor samples to create new treatment database that help determine personalized drug therapy approaches for children. The project is also being expanded to pediatric cancer clinical trials in EMEA, starting with sites in France and Lebanon.
“Cloud Powered Genomics” brings with it:
• Speed. The time it takes to process the required 90 billion data points is reduced from 10 days to 6 hours or less



• Precision. The analysis of multiple terabytes of data now enables an ability for doctors to prescribe treatments that are fully matched to the individual patient instead of relying on treatments designed for a broad base of patients.
• Collaboration. Researchers and doctors worldwide can now share diagnostic and case information while drawing on an existing storehouse of massive medical knowledge which, in turn, helps improve outcomes and refines treatment protocols.
• Scalability. Storage and processing capacity grow over time as vast amounts of data are collected.

While cloud computing enables researchers and doctors to cost effectively analyze the enormous amount of data necessary to produce these insights at a rapid rate, the privacy issues raised are also daunting. Last year’snullification of Safe Harbor by the European Courts brings these issues to the forefront.
Even without announcing specific details, the European Commission announced a new framework for governing the flow of data across the Atlantic Ocean. Referred to as “Privacy Shield”, the agreement is meant to be a reflection of the requirements set out by the European Court of Justice in its ruling on 6 October 2015, which declared the old Safe Harbour framework invalid.
“The new arrangement will provide stronger obligations on companies in the U.S. to protect the personal data of Europeans and stronger monitoring and enforcement by the U.S. Department of Commerce and Federal Trade Commission (FTC), including through increased cooperation with European Data Protection Authorities. The new arrangement includes commitments by the U.S. that possibilities under U.S. law for public authorities to access personal data transferred under the new arrangement will be subject to clear conditions, limitations and oversight, preventing generalised access. Europeans will have the possibility to raise any enquiry or complaint in this context with a dedicated new Ombudsperson.”
Specific elements highlighted by the EC include:
• “Strong obligations” and “robust enforcement” on companies that handle Europeans’ personal data
• The U.S. Department of Commerce will monitoring of company published commitments to “Privacy Shield” that make the commitments enforceable under U.S. law by the FTC.
• Applicability to companies that handle human resources data from Europe.
• “Clear safeguards and transparency obligations” on U.S. government agencies’ access to data,
• Written assurances from the United States that access will be subject to “clear limitations, safeguards and oversight mechanisms”.
While the agreement has been lauded by many, its effect on the use of cloud computing on trans-Atlantic genomic research is still questionable. This new development will certainly introduce uncertainty and doubt into the business side of this important and burgeoning industry. We can only hope that any unintended circumstance don’t hinder this important medical progress.

( This post was written as part of the Dell Insight Partners program, which provides news and analysis about the evolving world of tech. Dell sponsored this article, but the opinions are my own and don’t necessarily represent Dell’s positions or strategies.)

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