Cancer, cloud and privacy shield

AFCEA: Cyberspace at the Cross Roads

By G C Network | December 1, 2009

Starting December 2, 2009, the Armed Forces Communications and Electronics Association (AFCEA) will be putting on a two-day cyberspace conference. Titled “Cyberspace at the Cross Roads: The Intersection of Cyber,…

“Cloud” Shows Promise during Navy Trident Warrior

By G C Network | November 17, 2009

Last month as part of the Navy’s annual Trident Warrior exercise, Dataline, LLC successfully demonstrated that a standard shipboard communications infrastructure could be used to manage a commercial cloud infrastructure-as-a-service…

Government Cloud Computing Value Survey

By G C Network | November 15, 2009

As part of a continuing Government Cloud computing education program, Dataline, LLC has released a Government Cloud Computing Value Survey. This online resource has been designed as an aid to…

“Hyper-Standardized” Cloud Computing Environment a Plus for DISA

By G C Network | November 9, 2009

Henry Sienkiewcz, DISA Computer Services Technical Director, credits the cloud computing “hyper-standardized” environment for the improvement they have been able to deliver through their cloud computing initiative. During remarks at…

Army Deputy CIO Cites Army/DISA Cloud Computing Partnership

By G C Network | November 8, 2009

This week’s Federal Executive Forum taping highlighted collaboration between DISA and the Army on the service’s transition to cloud computing. Army Deputy Chief Information Officer Mike Krieger called it a…

Navy CIO Discusses Cloud Computing

By G C Network | November 6, 2009

During this week’s Federal Executive Forum taping, Navy CIO Robert Carey discussed his views on cloud computing. Stating that the NGEN and CANES (Navy Consolidated Afloat Networks and Enterprise Services)…

DoD, DHS and FBI Highlight Identity Management Interoperability

By G C Network | October 25, 2009

During this week’s Federal Executive Forum, key decision makers from DoD, DHS and FBI highlighted identity management interoperability as their key priority for 2010. Panelist included: Robert Mocny, Acting Director,…

EuroCloud Launches !!

By G C Network | October 22, 2009

Congratulations to Pierre-Jose Billotte for the successful launch of EuroCloud !! Established as a pan European network, EuroCloud are communities that represent a knowledgeable network of companies engaged local and…

Government Cloud Economics

By G C Network | October 17, 2009

In the The Economics of Cloud Computing, Gwen Morton and Ted Alford have published an EXCELLENT economic evaluation of the federal government’s push to cloud computing. Anyone interested in this…

Deputy CIA CIO Newest Ulitzer Author

By G C Network | October 13, 2009

Jill Tummler Singer, Deputy Chief Information Officer at the Central Intelligence Agency (CIA), is now a Ulitzer author. Appointed in November 2006, Ms Singer is responsible for ensuring CIA has…


(Originally published in Dell PowerMore)

For more than 10 years, the rapid rise of cloud computing has enabled an even more rapid application of cloud to genomic medicine. In fact, since the U.S. National Institutes of Health (NIH) lifted a 2007 ban on uploading their genomic data into cloud storage, the explosion in cloud use has accelerated. Some of the most impressive accomplishments in this field have included the:
• Pan-Cancer Analysis of Whole Genomes (PCAWG) project, that brings together whole-genome sequencing data from the International Cancer Genome Consortium (ICGC) and The Cancer Genome Atlas (TCGA) projects. This resource describes over 2000 tumor and matched control samples that cover more than 30 cancer entities. Academics will be using the EMBL-EBI Embassy Cloud and high-performance computing centers at the University of Chicago, the Electronics and Telecommunications Research Institute in Seoul, the University of California in Santa Cruz, the University of Tokyo and the Heidelberg Center for Personalized Oncology at the German Cancer Research Centre (DKFZ) (https://news.embl.de/science/1507-genome-cloud/);
• 100,000 Genomes Project in the United Kingdom includes genomic data from 70,000 people including National Health Service patients with a rare disease, plus their families, and patients with cancer;
• Phoenix, Arizona-based Translational Genomics Research Institute (TGen) and the Neuroblastoma and Medulloblastoma Translational Research Consortium on personalized medicine trials which uses high-performance computing in the cloud to sequence tumor samples to create new treatment database that help determine personalized drug therapy approaches for children. The project is also being expanded to pediatric cancer clinical trials in EMEA, starting with sites in France and Lebanon.
“Cloud Powered Genomics” brings with it:
• Speed. The time it takes to process the required 90 billion data points is reduced from 10 days to 6 hours or less



• Precision. The analysis of multiple terabytes of data now enables an ability for doctors to prescribe treatments that are fully matched to the individual patient instead of relying on treatments designed for a broad base of patients.
• Collaboration. Researchers and doctors worldwide can now share diagnostic and case information while drawing on an existing storehouse of massive medical knowledge which, in turn, helps improve outcomes and refines treatment protocols.
• Scalability. Storage and processing capacity grow over time as vast amounts of data are collected.

While cloud computing enables researchers and doctors to cost effectively analyze the enormous amount of data necessary to produce these insights at a rapid rate, the privacy issues raised are also daunting. Last year’snullification of Safe Harbor by the European Courts brings these issues to the forefront.
Even without announcing specific details, the European Commission announced a new framework for governing the flow of data across the Atlantic Ocean. Referred to as “Privacy Shield”, the agreement is meant to be a reflection of the requirements set out by the European Court of Justice in its ruling on 6 October 2015, which declared the old Safe Harbour framework invalid.
“The new arrangement will provide stronger obligations on companies in the U.S. to protect the personal data of Europeans and stronger monitoring and enforcement by the U.S. Department of Commerce and Federal Trade Commission (FTC), including through increased cooperation with European Data Protection Authorities. The new arrangement includes commitments by the U.S. that possibilities under U.S. law for public authorities to access personal data transferred under the new arrangement will be subject to clear conditions, limitations and oversight, preventing generalised access. Europeans will have the possibility to raise any enquiry or complaint in this context with a dedicated new Ombudsperson.”
Specific elements highlighted by the EC include:
• “Strong obligations” and “robust enforcement” on companies that handle Europeans’ personal data
• The U.S. Department of Commerce will monitoring of company published commitments to “Privacy Shield” that make the commitments enforceable under U.S. law by the FTC.
• Applicability to companies that handle human resources data from Europe.
• “Clear safeguards and transparency obligations” on U.S. government agencies’ access to data,
• Written assurances from the United States that access will be subject to “clear limitations, safeguards and oversight mechanisms”.
While the agreement has been lauded by many, its effect on the use of cloud computing on trans-Atlantic genomic research is still questionable. This new development will certainly introduce uncertainty and doubt into the business side of this important and burgeoning industry. We can only hope that any unintended circumstance don’t hinder this important medical progress.

This post was written as part of the Dell Insight Partners program, which provides news and analysis about the evolving world of tech. Dell sponsored this article, but the opinions are my own and don’t necessarily represent Dell’s positions or strategies.)

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