Cancer, cloud and privacy shield

“Cash for Clunkers” Should Have Used the Cloud!

By G C Network | August 24, 2009

Rich Bruklis wrote an excellent essy on how the government missed a perfect opportunity to use cloud computing. In “Cloud Opportunity Missed” he writes: “It appears that the voucher system…

US Navy Experiments With Secure Cloud Computing

By G C Network | August 20, 2009

This week in San Diego, CA the US Navy held the initial planning conference for Trident Warrior ’10. The Trident Warrior series is the premier annual FORCEnet Sea Trial Event…

GSA To Present On Cloud Initiative at NCOIC Plenary

By G C Network | August 13, 2009

A General Services Administration (GSA) representative is now scheduled to provide a briefing on the agency’s cloud computing initiative during a “Best Practices for Cloud Initiatives using Storefronts” session on…

FAA CIO Focuses on Cybersecurity

By G C Network | August 12, 2009

During this week Federal Executive Forum, FAA CIO Dave Bowen mentioned protection against software vulnerabilities, wireless intrusion and website vulnerabilities as his top cybersecurity priorities. As the Assistant Administrator for…

DHS Asst. Secretary Addresses Cybersecurity Priorities

By G C Network | August 11, 2009

Greg Schaffer, Assistant Secretary for CyberSecurity & Communications for the US Department of Homeland Security, sees Trusted Internet Connections, EINSTEIN, and front line defense of the nation’s networks as top…

US DoD Chief Security Officer on Cybersecurity Priorities

By G C Network | August 10, 2009

In a Federal Executive Forum interview, Robert Lentz, Chief Security Officer for the US Department of Defense, highlighted the departments cybersecurity priorities. Mr. Lentz is the Deputy Assistant Secretary of…

Twitter Under Denial of Service Attack

By G C Network | August 6, 2009

Multiple sources are reporting that Twitter continues to be under a denial of service attack. Some are speculating that this represents the power of a coordinated bot network attack. For…

NCOIC Holding Full Day Cloud Computing Session

By G C Network | August 5, 2009

The Network Centric Operations Industry Consortium (NCOIC) will be holding a one-day cloud computing session during its plenary meetings, 21-25 September at the Fair Lakes Hyatt in Fairfax, VA. A…

Sevatec a New Player in the Federal Cloud Computing Market

By G C Network | August 3, 2009

Just in time for the new Federal Cloud Computing Storefront, Sevatec, Inc. is announcing the development of a toolkit to help federal agencies transform their enterprise architectures to cloud computing…

GSA Releases Cloud Computing RFQ

By G C Network | July 31, 2009

Following through on a much anticipated action, GSA released their Cloud Computing Request For Quotation (RFQ) today. Cloud computing is a major part of President Obama’s reform effort and this…


(Originally published in Dell PowerMore)

For more than 10 years, the rapid rise of cloud computing has enabled an even more rapid application of cloud to genomic medicine. In fact, since the U.S. National Institutes of Health (NIH) lifted a 2007 ban on uploading their genomic data into cloud storage, the explosion in cloud use has accelerated. Some of the most impressive accomplishments in this field have included the:
• Pan-Cancer Analysis of Whole Genomes (PCAWG) project, that brings together whole-genome sequencing data from the International Cancer Genome Consortium (ICGC) and The Cancer Genome Atlas (TCGA) projects. This resource describes over 2000 tumor and matched control samples that cover more than 30 cancer entities. Academics will be using the EMBL-EBI Embassy Cloud and high-performance computing centers at the University of Chicago, the Electronics and Telecommunications Research Institute in Seoul, the University of California in Santa Cruz, the University of Tokyo and the Heidelberg Center for Personalized Oncology at the German Cancer Research Centre (DKFZ) (https://news.embl.de/science/1507-genome-cloud/);
• 100,000 Genomes Project in the United Kingdom includes genomic data from 70,000 people including National Health Service patients with a rare disease, plus their families, and patients with cancer;
• Phoenix, Arizona-based Translational Genomics Research Institute (TGen) and the Neuroblastoma and Medulloblastoma Translational Research Consortium on personalized medicine trials which uses high-performance computing in the cloud to sequence tumor samples to create new treatment database that help determine personalized drug therapy approaches for children. The project is also being expanded to pediatric cancer clinical trials in EMEA, starting with sites in France and Lebanon.
“Cloud Powered Genomics” brings with it:
• Speed. The time it takes to process the required 90 billion data points is reduced from 10 days to 6 hours or less



• Precision. The analysis of multiple terabytes of data now enables an ability for doctors to prescribe treatments that are fully matched to the individual patient instead of relying on treatments designed for a broad base of patients.
• Collaboration. Researchers and doctors worldwide can now share diagnostic and case information while drawing on an existing storehouse of massive medical knowledge which, in turn, helps improve outcomes and refines treatment protocols.
• Scalability. Storage and processing capacity grow over time as vast amounts of data are collected.

While cloud computing enables researchers and doctors to cost effectively analyze the enormous amount of data necessary to produce these insights at a rapid rate, the privacy issues raised are also daunting. Last year’snullification of Safe Harbor by the European Courts brings these issues to the forefront.
Even without announcing specific details, the European Commission announced a new framework for governing the flow of data across the Atlantic Ocean. Referred to as “Privacy Shield”, the agreement is meant to be a reflection of the requirements set out by the European Court of Justice in its ruling on 6 October 2015, which declared the old Safe Harbour framework invalid.
“The new arrangement will provide stronger obligations on companies in the U.S. to protect the personal data of Europeans and stronger monitoring and enforcement by the U.S. Department of Commerce and Federal Trade Commission (FTC), including through increased cooperation with European Data Protection Authorities. The new arrangement includes commitments by the U.S. that possibilities under U.S. law for public authorities to access personal data transferred under the new arrangement will be subject to clear conditions, limitations and oversight, preventing generalised access. Europeans will have the possibility to raise any enquiry or complaint in this context with a dedicated new Ombudsperson.”
Specific elements highlighted by the EC include:
• “Strong obligations” and “robust enforcement” on companies that handle Europeans’ personal data
• The U.S. Department of Commerce will monitoring of company published commitments to “Privacy Shield” that make the commitments enforceable under U.S. law by the FTC.
• Applicability to companies that handle human resources data from Europe.
• “Clear safeguards and transparency obligations” on U.S. government agencies’ access to data,
• Written assurances from the United States that access will be subject to “clear limitations, safeguards and oversight mechanisms”.
While the agreement has been lauded by many, its effect on the use of cloud computing on trans-Atlantic genomic research is still questionable. This new development will certainly introduce uncertainty and doubt into the business side of this important and burgeoning industry. We can only hope that any unintended circumstance don’t hinder this important medical progress.

This post was written as part of the Dell Insight Partners program, which provides news and analysis about the evolving world of tech. Dell sponsored this article, but the opinions are my own and don’t necessarily represent Dell’s positions or strategies.)

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