Cancer, cloud and privacy shield

February 23, 2016 / G C Network / Comments Off on Cancer, cloud and privacy shield

NPR on Cloud Computing

By G C Network | August 29, 2008

You know it’s important when NPR covers it !! On the “All Things Consider” radio show, NPR took a look into cloud computing. I’m not sure if Computing In The…

Sun Federal Cloud Computing eBook

By G C Network | August 28, 2008

Sun Federal now has it’s ebook on cloud computing available for all. The website doesn’t really offer any new information, but it does highlight how Sun Federal is targeting the…

Amazon Elastic Block Store

By G C Network | August 27, 2008

Last week, with their announcement of Elastic Block Store, Amazon has made enterprise class storage in the cloud a reality. According to Dion Hinchcliffe of Ziff Davis,”Elastic Block Store finally…

HP CTO On the Future

By G C Network | August 26, 2008

In a recent Web Guild article, Shane Robinson, Chief Strategy & Technology Office for HP outilined his belief that we are in the early stages of a major shift. As…

Google serves as first line of defense during Russia’s invasion of Georgia (A plug for the cloud)

By G C Network | August 25, 2008

As reported by the Christian Science Monitor, “As Georgian troops retreated to defend their capital from Russian attack, the websites of their government, also under fire, retreated to Google. In…

Apptis and Servervault announce Fedcloud

By G C Network | August 22, 2008

On August 18th, Apptis announced a partnership with ServerVault to offer a trusted cloud computing environment to federal agencies. Called Fedcloud they are offering a federally compliant, on-demand infrastructure that…

SOA-R Educational Series Schedule Changes

By G C Network | August 21, 2008

Since launching the SOA-R series back in July, cloud computing has become a hot topic among national security professionals. Evidence of this high level of interest is obvious from the…

Comments from Mr. Robert Carey, DON CIO and Army COS General George W. Casey, Jr

By G C Network | August 20, 2008

Over the last couple of weeks, I’ve had the distinct pleasure to listen to both Mr. Robert Carey, CIO, Department of the Navy, and General George W. Casey, Jr., Chief…

Akamai at SOA-R Session

By G C Network | August 19, 2008

Had another very enlightening SOA-R session last week. Of particular note to me was Akamai’s vision of cloud computing. As presented by Fran Trently, Sr. Director Public Sector, Akamai is…

Six Benefits of Cloud Computing

By G C Network | August 18, 2008

A Public CIO magazine article, to be published later this fall, will highlight six main benefits of cloud computing. Reduced Cost Increased Storage Highly Automated Flexibility More Mobility Allows IT…


(Originally published in Dell PowerMore)

For more than 10 years, the rapid rise of cloud computing has enabled an even more rapid application of cloud to genomic medicine. In fact, since the U.S. National Institutes of Health (NIH) lifted a 2007 ban on uploading their genomic data into cloud storage, the explosion in cloud use has accelerated. Some of the most impressive accomplishments in this field have included the:
• Pan-Cancer Analysis of Whole Genomes (PCAWG) project, that brings together whole-genome sequencing data from the International Cancer Genome Consortium (ICGC) and The Cancer Genome Atlas (TCGA) projects. This resource describes over 2000 tumor and matched control samples that cover more than 30 cancer entities. Academics will be using the EMBL-EBI Embassy Cloud and high-performance computing centers at the University of Chicago, the Electronics and Telecommunications Research Institute in Seoul, the University of California in Santa Cruz, the University of Tokyo and the Heidelberg Center for Personalized Oncology at the German Cancer Research Centre (DKFZ) (https://news.embl.de/science/1507-genome-cloud/);
• 100,000 Genomes Project in the United Kingdom includes genomic data from 70,000 people including National Health Service patients with a rare disease, plus their families, and patients with cancer;
• Phoenix, Arizona-based Translational Genomics Research Institute (TGen) and the Neuroblastoma and Medulloblastoma Translational Research Consortium on personalized medicine trials which uses high-performance computing in the cloud to sequence tumor samples to create new treatment database that help determine personalized drug therapy approaches for children. The project is also being expanded to pediatric cancer clinical trials in EMEA, starting with sites in France and Lebanon.
“Cloud Powered Genomics” brings with it:
• Speed. The time it takes to process the required 90 billion data points is reduced from 10 days to 6 hours or less



• Precision. The analysis of multiple terabytes of data now enables an ability for doctors to prescribe treatments that are fully matched to the individual patient instead of relying on treatments designed for a broad base of patients.
• Collaboration. Researchers and doctors worldwide can now share diagnostic and case information while drawing on an existing storehouse of massive medical knowledge which, in turn, helps improve outcomes and refines treatment protocols.
• Scalability. Storage and processing capacity grow over time as vast amounts of data are collected.

While cloud computing enables researchers and doctors to cost effectively analyze the enormous amount of data necessary to produce these insights at a rapid rate, the privacy issues raised are also daunting. Last year’snullification of Safe Harbor by the European Courts brings these issues to the forefront.
Even without announcing specific details, the European Commission announced a new framework for governing the flow of data across the Atlantic Ocean. Referred to as “Privacy Shield”, the agreement is meant to be a reflection of the requirements set out by the European Court of Justice in its ruling on 6 October 2015, which declared the old Safe Harbour framework invalid.
“The new arrangement will provide stronger obligations on companies in the U.S. to protect the personal data of Europeans and stronger monitoring and enforcement by the U.S. Department of Commerce and Federal Trade Commission (FTC), including through increased cooperation with European Data Protection Authorities. The new arrangement includes commitments by the U.S. that possibilities under U.S. law for public authorities to access personal data transferred under the new arrangement will be subject to clear conditions, limitations and oversight, preventing generalised access. Europeans will have the possibility to raise any enquiry or complaint in this context with a dedicated new Ombudsperson.”
Specific elements highlighted by the EC include:
• “Strong obligations” and “robust enforcement” on companies that handle Europeans’ personal data
• The U.S. Department of Commerce will monitoring of company published commitments to “Privacy Shield” that make the commitments enforceable under U.S. law by the FTC.
• Applicability to companies that handle human resources data from Europe.
• “Clear safeguards and transparency obligations” on U.S. government agencies’ access to data,
• Written assurances from the United States that access will be subject to “clear limitations, safeguards and oversight mechanisms”.
While the agreement has been lauded by many, its effect on the use of cloud computing on trans-Atlantic genomic research is still questionable. This new development will certainly introduce uncertainty and doubt into the business side of this important and burgeoning industry. We can only hope that any unintended circumstance don’t hinder this important medical progress.

( This post was written as part of the Dell Insight Partners program, which provides news and analysis about the evolving world of tech. Dell sponsored this article, but the opinions are my own and don’t necessarily represent Dell’s positions or strategies.)

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