Cancer, cloud and privacy shield

February 23, 2016 / G C Network / Comments Off

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Stateless Computing

By G C Network | August 15, 2008

A few days ago I read a review of Merrill Lynch’s Jeffrey Birnbaum LinuxWorld keynote on stateless computing. “With stateless computing, users’ settings and data are automatically saved to the…

Cloud Services

By G C Network | August 14, 2008

38% of 456 business technology professionals in a Information Week survey indicated that they currently use or will consider using services from a cloud provider. This seems much betterthan the…

Amazon, Elastra and the New Enterprise Data Center

By G C Network | August 13, 2008

Last week Amazon made an investment into Elastra. Some see this as Amazon’s enterprise play. Others see it as move towards the viability of private clouds. I see it as…

Microsoft Midori

By G C Network | August 12, 2008

Last week word got out that Microsoft’s new research project codenamed Midori. According to Information Week “the Midori system is being called Microsoft’s first cloud-based OS, and it could one…

Dell Trademarking Cloud Computing

By G C Network | August 11, 2008

There has been quite a bit of chatter lately over Dell’s attempt to patent “cloud computing”. Last week, the US Patent and Trade Office put an end to those aspirations…

Rob Enderle Cautions on Cloud Computing

By G C Network | August 8, 2008

Words of caution from Rob Enderle in “The Real Truth and Technology and IT”: “The key to success in the cloud will be keeping solutions simple, plus understanding and mitigating…

3 Important Point for Federal Government Cloud Computing

By G C Network | August 7, 2008

Point 1: In May, Verizon and AT&T were awarded a DHS task order for just under $1B to provide telecommunications services to the department. Verizon won the lead provider’s spot…

A Cloud Methodology

By G C Network | August 7, 2008

Although this was published in June, I just saw it and felt it was to good not to repeat: A Methodology for Cloud Computing Architecture Peel off the applications individually,…

IBM Invests Nearly $400M on Cloud Computing Centers

By G C Network | August 6, 2008

In a press release last week, IBM says that it will spend $360 million to build its most sophisticated, state-of-the-art data center at its facility in Research Triangle Park (RTP),…

According to their website, The Network Centric Operations Industry Consortium (NCOIC) has scheduled a session on cloud computing at their upcoming plenary session in September. In case you haven’t heard…

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(Originally published in Dell PowerMore)

For more than 10 years, the rapid rise of cloud computing has enabled an even more rapid application of cloud to genomic medicine. In fact, since the U.S. National Institutes of Health (NIH) lifted a 2007 ban on uploading their genomic data into cloud storage, the explosion in cloud use has accelerated. Some of the most impressive accomplishments in this field have included the:

• Pan-Cancer Analysis of Whole Genomes (PCAWG) project, that brings together whole-genome sequencing data from the International Cancer Genome Consortium (ICGC) and The Cancer Genome Atlas (TCGA) projects. This resource describes over 2000 tumor and matched control samples that cover more than 30 cancer entities. Academics will be using the EMBL-EBI Embassy Cloud and high-performance computing centers at the University of Chicago, the Electronics and Telecommunications Research Institute in Seoul, the University of California in Santa Cruz, the University of Tokyo and the Heidelberg Center for Personalized Oncology at the German Cancer Research Centre (DKFZ) (https://news.embl.de/science/1507-genome-cloud/);

• 100,000 Genomes Project in the United Kingdom includes genomic data from 70,000 people including National Health Service patients with a rare disease, plus their families, and patients with cancer;

• Phoenix, Arizona-based Translational Genomics Research Institute (TGen) and the Neuroblastoma and Medulloblastoma Translational Research Consortium on personalized medicine trials which uses high-performance computing in the cloud to sequence tumor samples to create new treatment database that help determine personalized drug therapy approaches for children. The project is also being expanded to pediatric cancer clinical trials in EMEA, starting with sites in France and Lebanon.

“Cloud Powered Genomics” brings with it:

• Speed. The time it takes to process the required 90 billion data points is reduced from 10 days to 6 hours or less

• Precision. The analysis of multiple terabytes of data now enables an ability for doctors to prescribe treatments that are fully matched to the individual patient instead of relying on treatments designed for a broad base of patients.

• Collaboration. Researchers and doctors worldwide can now share diagnostic and case information while drawing on an existing storehouse of massive medical knowledge which, in turn, helps improve outcomes and refines treatment protocols.

• Scalability. Storage and processing capacity grow over time as vast amounts of data are collected.

While cloud computing enables researchers and doctors to cost effectively analyze the enormous amount of data necessary to produce these insights at a rapid rate, the privacy issues raised are also daunting. Last year’snullification of Safe Harbor by the European Courts brings these issues to the forefront.

Even without announcing specific details, the European Commission announced a new framework for governing the flow of data across the Atlantic Ocean. Referred to as “Privacy Shield”, the agreement is meant to be a reflection of the requirements set out by the European Court of Justice in its ruling on 6 October 2015, which declared the old Safe Harbour framework invalid.

“The new arrangement will provide stronger obligations on companies in the U.S. to protect the personal data of Europeans and stronger monitoring and enforcement by the U.S. Department of Commerce and Federal Trade Commission (FTC), including through increased cooperation with European Data Protection Authorities. The new arrangement includes commitments by the U.S. that possibilities under U.S. law for public authorities to access personal data transferred under the new arrangement will be subject to clear conditions, limitations and oversight, preventing generalised access. Europeans will have the possibility to raise any enquiry or complaint in this context with a dedicated new Ombudsperson.”

Specific elements highlighted by the EC include:

• “Strong obligations” and “robust enforcement” on companies that handle Europeans’ personal data

• The U.S. Department of Commerce will monitoring of company published commitments to “Privacy Shield” that make the commitments enforceable under U.S. law by the FTC.

• Applicability to companies that handle human resources data from Europe.

• “Clear safeguards and transparency obligations” on U.S. government agencies’ access to data,

• Written assurances from the United States that access will be subject to “clear limitations, safeguards and oversight mechanisms”.

While the agreement has been lauded by many, its effect on the use of cloud computing on trans-Atlantic genomic research is still questionable. This new development will certainly introduce uncertainty and doubt into the business side of this important and burgeoning industry. We can only hope that any unintended circumstance don’t hinder this important medical progress.

( This post was written as part of the Dell Insight Partners program, which provides news and analysis about the evolving world of tech. Dell sponsored this article, but the opinions are my own and don’t necessarily represent Dell’s positions or strategies.)

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