Cancer, cloud and privacy shield

Operation Golden Phoenix

By G C Network | July 22, 2008

This week, Dataline is participating in Operation Golden Phoenix. Operation Golden Phoenix is a four-day multi-agency collaborative training event designed to assist federal, state and local agencies with large and…

DISA Reaches out to Industry on Cloud Computing

By G C Network | July 21, 2008

In an interview with Computerworld , published in the New York Times, John Garing expanded on his goals for the DISA cloud computing initiative. Garing said that, “… he and…

Cloud Computing is $160B Market

By G C Network | July 18, 2008

According to the Financial Post, a Merrill Lynch Note estimates that cloud computing could be a $160B market by 2011. The companies that they see in the marketplace are shown…

SOA-R Educational Series: What is Cloud Computing

By G C Network | July 18, 2008

On July 16th, SOA-R held it’s first of six educational sessions on cloud computing for national security missions. Presenters during this first event were: Steven L Armentrout, PhDPresident & CEOParabon…

Gartner: Cloud Computing Fraught with Security Risks

By G C Network | July 17, 2008

Cloud computing is fraught with security risks, according to analyst firm Gartner. Smart customers will ask tough questions, and consider getting a security assessment from a neutral third party before…

The Definition of “Net-centric”

By G C Network | July 16, 2008

Last week, the Google Cloud Computing Group debated the definition of net-centric. The key thought was that net-centric was nothing more than internet-centric or basically “online” and therefore it really…

Cloud Computing Journal Launched

By G C Network | July 15, 2008

“The world’s first journal devoted to the delivery of massively scalable IT resources as a service using Internet technologies has been launched by SYS-CON Media. The all-new “Cloud Computing Journal”…

SOA-R First Session Presentations Announced

By G C Network | July 14, 2008

The presentations for the first session of the SOA-R Educational Series sesion have just been announced: Steven L Armentrout, PhDPresident & CEOParabon Grids, Clouds and Computation: Getting to Ground Truth…

Cloud Storage as a Service

By G C Network | July 14, 2008

In SAN vs cloud storage – a gray or silver lining? , Joseph Hunkins review last December’s observations of cloud storage by Chris Mellor of Techworld: “Google does not use…

Google: Model for the Systems Architecture of the Future

By G C Network | July 14, 2008

In December of 2005, Prof. Paul A. Strassmann of George Mason University, provided an excellent outline for cloud computing success in a netcentric environment: Network-Centric Requirements (2010)• Downtime ( 1…


(Originally published in Dell PowerMore)

For more than 10 years, the rapid rise of cloud computing has enabled an even more rapid application of cloud to genomic medicine. In fact, since the U.S. National Institutes of Health (NIH) lifted a 2007 ban on uploading their genomic data into cloud storage, the explosion in cloud use has accelerated. Some of the most impressive accomplishments in this field have included the:
• Pan-Cancer Analysis of Whole Genomes (PCAWG) project, that brings together whole-genome sequencing data from the International Cancer Genome Consortium (ICGC) and The Cancer Genome Atlas (TCGA) projects. This resource describes over 2000 tumor and matched control samples that cover more than 30 cancer entities. Academics will be using the EMBL-EBI Embassy Cloud and high-performance computing centers at the University of Chicago, the Electronics and Telecommunications Research Institute in Seoul, the University of California in Santa Cruz, the University of Tokyo and the Heidelberg Center for Personalized Oncology at the German Cancer Research Centre (DKFZ) (https://news.embl.de/science/1507-genome-cloud/);
• 100,000 Genomes Project in the United Kingdom includes genomic data from 70,000 people including National Health Service patients with a rare disease, plus their families, and patients with cancer;
• Phoenix, Arizona-based Translational Genomics Research Institute (TGen) and the Neuroblastoma and Medulloblastoma Translational Research Consortium on personalized medicine trials which uses high-performance computing in the cloud to sequence tumor samples to create new treatment database that help determine personalized drug therapy approaches for children. The project is also being expanded to pediatric cancer clinical trials in EMEA, starting with sites in France and Lebanon.
“Cloud Powered Genomics” brings with it:
• Speed. The time it takes to process the required 90 billion data points is reduced from 10 days to 6 hours or less



• Precision. The analysis of multiple terabytes of data now enables an ability for doctors to prescribe treatments that are fully matched to the individual patient instead of relying on treatments designed for a broad base of patients.
• Collaboration. Researchers and doctors worldwide can now share diagnostic and case information while drawing on an existing storehouse of massive medical knowledge which, in turn, helps improve outcomes and refines treatment protocols.
• Scalability. Storage and processing capacity grow over time as vast amounts of data are collected.

While cloud computing enables researchers and doctors to cost effectively analyze the enormous amount of data necessary to produce these insights at a rapid rate, the privacy issues raised are also daunting. Last year’snullification of Safe Harbor by the European Courts brings these issues to the forefront.
Even without announcing specific details, the European Commission announced a new framework for governing the flow of data across the Atlantic Ocean. Referred to as “Privacy Shield”, the agreement is meant to be a reflection of the requirements set out by the European Court of Justice in its ruling on 6 October 2015, which declared the old Safe Harbour framework invalid.
“The new arrangement will provide stronger obligations on companies in the U.S. to protect the personal data of Europeans and stronger monitoring and enforcement by the U.S. Department of Commerce and Federal Trade Commission (FTC), including through increased cooperation with European Data Protection Authorities. The new arrangement includes commitments by the U.S. that possibilities under U.S. law for public authorities to access personal data transferred under the new arrangement will be subject to clear conditions, limitations and oversight, preventing generalised access. Europeans will have the possibility to raise any enquiry or complaint in this context with a dedicated new Ombudsperson.”
Specific elements highlighted by the EC include:
• “Strong obligations” and “robust enforcement” on companies that handle Europeans’ personal data
• The U.S. Department of Commerce will monitoring of company published commitments to “Privacy Shield” that make the commitments enforceable under U.S. law by the FTC.
• Applicability to companies that handle human resources data from Europe.
• “Clear safeguards and transparency obligations” on U.S. government agencies’ access to data,
• Written assurances from the United States that access will be subject to “clear limitations, safeguards and oversight mechanisms”.
While the agreement has been lauded by many, its effect on the use of cloud computing on trans-Atlantic genomic research is still questionable. This new development will certainly introduce uncertainty and doubt into the business side of this important and burgeoning industry. We can only hope that any unintended circumstance don’t hinder this important medical progress.

This post was written as part of the Dell Insight Partners program, which provides news and analysis about the evolving world of tech. Dell sponsored this article, but the opinions are my own and don’t necessarily represent Dell’s positions or strategies.)

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