Cancer, cloud and privacy shield

February 23, 2016 / G C Network / Comments Off on Cancer, cloud and privacy shield

Yahoo-Microsoft Merger Proxy Fight – May 14, 2008

By G C Network | May 18, 2008

As I alluded to last week, “It’s not over ’till it’s over” Carl Ichan Looking to Start Yahoo Proxy Fight Money – The Microsoft-Yahoo Merger may not be over. Billionaire…

Now in the ring Sun/Amazon! – May 04, 2008

By G C Network | May 18, 2008

The Sun/Amazon cloud may be announced soon. Sun CEO Jonathan Schwartz delivered a short keynote at Startup Camp in San Francisco, an adjunct event to the JavaOne Conference. According to…

Microsoft gives up on Yahoo? – May 04, 2008

By G C Network | May 18, 2008

“Cloud computing is far more than a concept. With Broadband Internet connections now all-but-ubiquitous and microcomputers and locally-run software now so trouble-prone, Cloud Computing’s time has come.” This is a…

IBM, Google and the Blue Business Platform – May 01, 2008

By G C Network | May 18, 2008

Today was good !! This morning. there was a main session built around “CIO 2.0”. The basic premise was that CIOs have now earned a seat at the business management…

The coming cloud – April 30, 2008

By G C Network | May 18, 2008

I attended the IBM Public Sector briefing this morning. The IBM executives were clearly basking in a financial performance glow. After ending 2007 with increases in revenue, profit and earnings…

Google, Cloud Computing, and the US Intelligence Community – April 29, 2008

By G C Network | May 18, 2008

Just arrived in Los Angeles for the IBM Business Partner Leadership Conference. IBM is billing this as a “new” conference, but I have my doubts. I am, however, very interested…

Location Based Services – April 25, 2008

By G C Network | May 18, 2008

INmobile.org is a exclusive community for executives in wireless industry. As a member, I have the opportunity to participate in a number of interesting discussions about mobile and wireless technology.…

IBM Business Partner Leadership Conference – April 23, 2008

By G C Network | May 18, 2008

I just completed registration for the IBM Business Partner Leadership Conference. This is a new invitation-only conference being held this year in Los Angeles from Wednesday, April 30th through Friday,…

Telephone & Web = WOW !! – April 21, 2008

By G C Network | May 18, 2008

The power of the Internet and the web lies in its ability to provide access to information. The mobile web takes this one step further with its ability to provide…

The Power of Family Oral History – April 19, 2008

By G C Network | May 18, 2008

Although I just started this yesterday, I’ve decided to backdate this entry to last Saturday, April 12, 2008. That’s when my family had it’s 3rd Annual Black History Party. The…


(Originally published in Dell PowerMore)

For more than 10 years, the rapid rise of cloud computing has enabled an even more rapid application of cloud to genomic medicine. In fact, since the U.S. National Institutes of Health (NIH) lifted a 2007 ban on uploading their genomic data into cloud storage, the explosion in cloud use has accelerated. Some of the most impressive accomplishments in this field have included the:
• Pan-Cancer Analysis of Whole Genomes (PCAWG) project, that brings together whole-genome sequencing data from the International Cancer Genome Consortium (ICGC) and The Cancer Genome Atlas (TCGA) projects. This resource describes over 2000 tumor and matched control samples that cover more than 30 cancer entities. Academics will be using the EMBL-EBI Embassy Cloud and high-performance computing centers at the University of Chicago, the Electronics and Telecommunications Research Institute in Seoul, the University of California in Santa Cruz, the University of Tokyo and the Heidelberg Center for Personalized Oncology at the German Cancer Research Centre (DKFZ) (https://news.embl.de/science/1507-genome-cloud/);
• 100,000 Genomes Project in the United Kingdom includes genomic data from 70,000 people including National Health Service patients with a rare disease, plus their families, and patients with cancer;
• Phoenix, Arizona-based Translational Genomics Research Institute (TGen) and the Neuroblastoma and Medulloblastoma Translational Research Consortium on personalized medicine trials which uses high-performance computing in the cloud to sequence tumor samples to create new treatment database that help determine personalized drug therapy approaches for children. The project is also being expanded to pediatric cancer clinical trials in EMEA, starting with sites in France and Lebanon.
“Cloud Powered Genomics” brings with it:
• Speed. The time it takes to process the required 90 billion data points is reduced from 10 days to 6 hours or less



• Precision. The analysis of multiple terabytes of data now enables an ability for doctors to prescribe treatments that are fully matched to the individual patient instead of relying on treatments designed for a broad base of patients.
• Collaboration. Researchers and doctors worldwide can now share diagnostic and case information while drawing on an existing storehouse of massive medical knowledge which, in turn, helps improve outcomes and refines treatment protocols.
• Scalability. Storage and processing capacity grow over time as vast amounts of data are collected.

While cloud computing enables researchers and doctors to cost effectively analyze the enormous amount of data necessary to produce these insights at a rapid rate, the privacy issues raised are also daunting. Last year’snullification of Safe Harbor by the European Courts brings these issues to the forefront.
Even without announcing specific details, the European Commission announced a new framework for governing the flow of data across the Atlantic Ocean. Referred to as “Privacy Shield”, the agreement is meant to be a reflection of the requirements set out by the European Court of Justice in its ruling on 6 October 2015, which declared the old Safe Harbour framework invalid.
“The new arrangement will provide stronger obligations on companies in the U.S. to protect the personal data of Europeans and stronger monitoring and enforcement by the U.S. Department of Commerce and Federal Trade Commission (FTC), including through increased cooperation with European Data Protection Authorities. The new arrangement includes commitments by the U.S. that possibilities under U.S. law for public authorities to access personal data transferred under the new arrangement will be subject to clear conditions, limitations and oversight, preventing generalised access. Europeans will have the possibility to raise any enquiry or complaint in this context with a dedicated new Ombudsperson.”
Specific elements highlighted by the EC include:
• “Strong obligations” and “robust enforcement” on companies that handle Europeans’ personal data
• The U.S. Department of Commerce will monitoring of company published commitments to “Privacy Shield” that make the commitments enforceable under U.S. law by the FTC.
• Applicability to companies that handle human resources data from Europe.
• “Clear safeguards and transparency obligations” on U.S. government agencies’ access to data,
• Written assurances from the United States that access will be subject to “clear limitations, safeguards and oversight mechanisms”.
While the agreement has been lauded by many, its effect on the use of cloud computing on trans-Atlantic genomic research is still questionable. This new development will certainly introduce uncertainty and doubt into the business side of this important and burgeoning industry. We can only hope that any unintended circumstance don’t hinder this important medical progress.

( This post was written as part of the Dell Insight Partners program, which provides news and analysis about the evolving world of tech. Dell sponsored this article, but the opinions are my own and don’t necessarily represent Dell’s positions or strategies.)

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